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The Invisible Illness

This is about a disease me and millions of other people have. We are tormented on a daily basis and yet few doctors know... I want to raise awareness so please share with everyone you know



1)

The illness or Syndrome is called Postural Orthastatic Tachycardia Syndrome or P.O.T.S. This is not well know but it is such a big problem and it has no cure.

 
 

2)

The patients are 80% women of the ages from 5 all the way to 40 or older. I myself won't release my actual age. You can guess.

 
 

3)

The symptoms can completely turn someone's life upside down. People are in wheelchairs or bedridden or in a hospital... if you can even be accepted. Doctors have told me I am crazy and that I need a psychologist. I can't even get the treatment I need at the hospitals and I desperately need saline and I am sure many others do too.

 
 

4)

The symptoms include:

Dangerously High Blood Pressure
Dangerously Low Blood Pressure
Migranes
Dehydration
No Appetite (for weeks at a time)
Dizziness upon standing
Light headedness upon standing
Shaking
Shortness of breath
Passing out (quite common)
Nausea
Inability to stand
Fatigue
Brain Fog
Over Emotional
Memory Loss
Anxiety

 
 

5)

No one knows why this happens. No one knows how to cure it. We have to eat scary proportions of salt and take medications like beta blockers. I take Midodrine, Fludicortizone and Atentoloyl.

 
 

6)

P.O.T.S is a malfunction of the Autonomic Nervous System which controls everything you can't such as heartbeat, body temperature and more. It makes it so it can't do any of these things and it starves the brain of oxygen. When we stand the veins are supposed to contract so all the blood doesn't fall to our legs and can go back to the heart. That is why we can also have red, heavy or swollen legs because blood will pool in our legs, unable to get back to the heart.

 
 

7)

This Syndrome is a living nightmare for people living with it and we ALL struggle everyday.

 
 

8)

P.O.T.S patients are commonly mistaken of having panic disorder because many doctors don't know. (I started getting a headache around this point of making the test)

 
 

9)

Matter of fact... Back in the civil war there were a few... Select warriors that were apparently blacking out or forgetting tasks. Many dropped unconscious on the battle field. They were told horrible things about how they were incapable of anything, lazy and useless and eventually kicked out. Doctors aware of P.O.T.S suspect they had Postural Othastatic.

 
 

10)

Thank you so much for reading this! PLEASE SHARE WITH EVERYONE! Even though this is just a simple thing on a simple site it can be bigger! Get it on Youtube! Everything! We NEED a cure and awareness can greatly help! Thank you for getting this far!

 
 
 


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